Manual Down Syndrome: Visions for the 21st Century

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As a result of the multiple developmental and medical issues that individuals with DS are at risk for, lifelong care is needed to identify and regularly address medical problems. Medical guidelines have been published outlining the specific medical needs for children, adolescents and adults with Down syndrome to serve as a guide to their care for both parents and health professionals.

Regular surveillance of hearing, vision, thyroid, growth and development is essential. Some children may also require surgical intervention for heart conditions, gastrointestinal problems, or hearing deficits. Children with DS often have delays in gross motor development, speech and expressive language skills, and fine motor abilities.

Children with DS benefit from early involvement in therapy services. This may include physical, occupational, and speech therapy depending on their individual needs.

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Most children with DS also require additional assistance with learning and an individualized education plan IEP in school. The majority of individuals with DS need support as adults with long term medical care, employment, community inclusions and home life assistance.

Many families that choose to adopt children with DS have their own personal experience with other individuals with DS, yet there are many other adoptive families that have less familiarity with the condition. Both types of families often benefit from the DS specific resources available in the community including organizations dedicated to provided information and support to families.

Down Syndrome

People with Down syndrome are delightful children and adults that will benefit from lifelong support for medical and educational needs. Judith K. Eckerle, M. Take me to the survey.


This can add complexity to a situation that may already be emotionally difficult. It is important to remember that this is your decision, and it is important that you feel as comfortable as possible with that decision.

Down Syndrome

Finding people to support you on this journey will continue to be very important. Listed below are some great resources to get you started. Please feel free to contact us as well. The Joseph P. Kennedy, Jr.

Biblioteca Madre María Teresa Guevara

The purpose of this site is to provide families with balanced and accurate information about a diagnosis of Down syndrome either during their pregnancy or at birth. This site includes a blog and a public dialogue board to provide support for those who have received news during pregnancy or after birth that their baby has Down syndrome.

The Congratulations Project is an initiative in which members of the PALS family write letters to new members of the Down syndrome community.

These letters are designed to inspire, encourage, welcome and, most importantly, congratulate new parents and siblings of a child with Down syndrome. Home About Services Providers Connect.

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